There has been a bit of an underground movement in the blog community lately to quit the bullshit and expose to your readers the genuine self, not just what type of couch pillow looks best in your sitting room (who has a sitting room by the way). A movement began and it was called "Things I'm Afraid To Tell You" where well read bloggers would do a post exposing things they are afraid of, the silly, sad, and the true. One of my favorite bloggers/photographers, Sarah, from A House In The Hills recently exposed her battle with Crohn's disease. She described how she was afraid and hesitant to share her story but that she knew that if it meant she could help someone else, it would be worth it.
So, I have decided to share one of my more intimate stories with you today. At age 12 I was diagnosed with scoliosis which is essentially a curvature of the spine. It is very normal for most women to have a slight curve, but mine wasn't slight and it was getting worse. I was referred to an orthopedic surgeon and fitted for a big pink back brace that I would wear at night from age 13-17. The thing hurt like a mother and was impossible to travel with but ended up accompanying me to China, summer camp and many a road trip. Like all things, eventually it got easier. With scoliosis, the curve is supposed stop progressing after puberty. At 18 I was done growing, yet the curve continued to worsen, and at 20 it had progressed quickly.
The thing with scoliosis is that you don't have pain in your spine, it's the way the rest of your body adjusts that causes pain. For example, my rib cages are different sizes and my right shoulder blade doesn't lay flat, these are the ways my body grew and changed to accommodate the curve and these are the reasons for discomfort and pain. I decided that I had dealt with this condition for long enough (8 years) and that I had to rip the band aid off and get the surgery, rather than have it hang over my head for another who knows how many years.
The thing with a spinal fusion is, it's a HUGE surgery, mine lasted 8 hrs and I had to basically sign my life away because the risks are so high, the highest being loss of sight, paralyzation and death. I was nervous but had a feeling I would be ok. I write this post now because my 3 yr. surgery anniversary was just two days ago, June 12th. I always remember the recovery of course, which is something I wouldn't wish upon my worst enemy, but mostly I remember the love and support of friends, family, my church, classmates and Bob.
I want to share my story because I found great comfort in talking with and hearing the stories of other girls who had already gone through the surgery. There are so many details your surgeon just doesn't know, because he or she hasn't experienced the recovery themselves. A few fun facts:
- You can't drink water after your surgery until you pass gas. This took me 2 days. Two torturous days where I dreamt of watermelon and attempted to bribe a nurse for a sip of water.
- They won't let you leave the hospital until you poop. good luck.
- The car ride home is beyond painful. Take as many pillows to cushion those bumps as possible and take the smoothest roads out there.
- You cannot bathe yourself so you better have a caretaker (mine was my Mom) who you are comfortable with seeing you naked and who will wash your hair for you.
- You must have friends who love to watch TV series on DVD as much as you do because you will be laying in bed for 5 weeks.
- Don't eat dairy! You're already backed up from the insane pain killers they put you on!
- You haven't slept this much since infancy. Enjoy it!
iz
I love you sooooo much.
ReplyDeleteXoxoxo momma
Brave, beautiful and talented...rock on girl...
ReplyDeleteWow, Iz, Wow. Lots of love to you. We all have our battles. Thank you for opening up and showing me yours. Makes me contemplate on talking about my own battles on my own blog. I probably will, in time. Thank you. I am usually writing daily posts on personal quotes on my tumblr. This was mine this week: "Within our deepest struggle we find the greatest insight."
ReplyDeleteThank you for your sweet comments.-iz
ReplyDeleteIz, your Dad shared your Blog with me because my fifteen year old had the same surgery on June 28th. I told him you are an amazing young lady! I shared your blog with my son and he wanted me to tell you both "thank you". We had found a few people that had the surgery before his, but none with the details that you have. I wish I had your blog before his surgery, but he has been inspired by reading it to share his story with others as well. Happy Belated Anniversary! Mz Anne
ReplyDeleteAnne, Thank You so much for your nice note. My mission has been accomplished- I'm so glad that your son found something in my story that he could connect to. I hope his recovery is going well and if you have any questions at all- don't hesitate to ask! -iz
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